Muscular Dystrophy Surveillance Tracking and Research Network [MD STARnet]: Feasibility of Expansion to other Muscular Dystrophies

Post Date

December 16th 2010

Application Due Date

March 24th 2011

On-time submission requires that electronic applications be error-free and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no

Funding Opportunity Number

RFA-DD-11-006

CFDA Number(s)

93.283

Funding Instrument Type(s)

Cooperative Agreement

Funding Activity Categories

Health

Number of Awards

5

Eligibility Categories

Other

Only organizations operating as established MD STARnet sites under RFA DD-06-002 or DD-08-002 are eligible to submit an application under this FOA. These eligible sites include: 1. University of Arizona, College of Medicine, 2. Colorado Department of Public Health and Environment, 3. University of Iowa, College of Medicine, 4. New York State Department of Health, and 5. Hawaii Department of Health. Existing MD STARnet sites have an established population-based Duchenne/Becker muscular dystrophy surveillance system utilizing a unique protocol and methods to collect longitudinal data on individuals with DBMD, and provide the basis for this expansion demonstration effort. Limiting eligibility to these sites enables the continuation of longitudinal data collection on over 700 individuals with DBMD and for efficient expansion of data collection to other muscular dystrophies.

Funding

• Award Range:

  $0 - $450000

Grant Description

This funding opportunity announcement (FOA) has two components (A and B). CDC solicits UO1 grant applications to support Component A Core - to characterize the population of individuals who have muscular dystrophies through modification and expansion of MD STARnet. The ultimate goal is to improve access to care and the health of individuals with muscular dystrophies (MDs). All eligible applicants for component A may also apply for Component B – Enhanced Activities (1. Data Coordinating Center (DCC); 2. Abstractor training and quality assurance/control activities; 3. National coordinating center; and 4. Georgia healthcare transitions interview) to support ongoing MD STARnet activities.

Contact Information

• Agency

  Department of Health and Human Services

• Office:

  Centers for Disease Control and Prevention

• Agency Contact:

  Centers for Disease Control and Prevention (CDC)
  Procurement and Grants Office (PGO)
  Technical Information and Managment Section (TIMS)
  Phone 770-488-2700

• Agency Mailing Address:

  general email

• Agency Email Address:

  pgotim@cdc.gov

• Location:

  Centers for Disease Control and Prevention

• More Information:

  Please click on the Full Announcement box at the top of the synopsis page