Newborn Screening Technical Assistance and Data Repository Program

Post Date

January 17th 2012

Application Due Date

February 14th 2012

Funding Opportunity Number

HRSA-12-070

CFDA Number(s)

93.110

Funding Instrument Type(s)

Cooperative Agreement

Funding Activity Categories

Health

Number of Awards

1

Eligibility Categories

Non-Federally Recognized Native American Tribal Organizations
Other

As cited in 42 CFR Part 51a.3(a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply for this federal funding opportunity. Faith-based and community organizations are eligible to apply for this federal funding opportunity. Applicants must have significant familiarity and/or experience with newborn screening programs, quality assessment and improvement, public health, and collaboration with public health and community programs, professional organizations, and state and federal agencies, as well as other programs and organizations that collaborate to improve and provide newborn screening. Any applicant that can serve in a national capacity to coordinate services among the state newborn screening programs is eligible to apply.

Funding

• Estimated Total Funding:

  $850000

• Award Range:

  $None - $None

Grant Description

This announcement solicits applications for the Newborn Screening Technical Assistance and Data Repository Program. The purpose of this cooperative agreement is to provide leadership on the implementation of state-based public health newborn screening and other genetics programs, as appropriate, through technical assistance, resource development, state education and training, policy initiatives, disorder surveillance, evidence-based data collection, evaluation, and collaborative efforts with stakeholders, including federal and non-federal partners. The goals of the program are to: 1) Develop and coordinate educational activities and information related to newborn screening that are responsive to information gaps identified by providers and public health professionals; 2) Incorporate health information technology to develop a National Newborn Screening Quality Measures Data Repository to standardize, maintain, and analyze quantitative quality measures information in order to monitor and evaluate the impact of state and territorial newborn screening programs and support short term monitoring of children with congenital conditions identified by newborn screening; 3) Support activities that will strengthen the integration of child health information systems, laboratory performance and quality assurance, short and long term newborn screening follow-up and public health interactions at the community, state, regional, and national levels; 4) Provide a forum for timely, interactive communication between key state and public health stakeholders in the areas of newborn screening; 5) Develop and implement an innovative national quality assurance/enhancement certification program, referred to as the "Newborn Screening Quality Certification," for state newborn screening systems in conjunction with HRSA, Centers for Disease Control and Prevention (CDC) and the Association of Public Health Laboratories (APHL); 6) Support training opportunities for public health practitioners in the areas of newborn screening; and 7) Coordinate and provide assistance to MCHB funded programs, including but not limited to the National Coordinating Center for the Regional Collaboratives, the Regional Genetic and Newborn Screening Service Collaboratives and the Clearinghouse of Newborn Screening Information. Form partnerships with various stakeholders including federal and non-federal organizations for innovative methods of data collection, quality improvement and educational outreach. Activities proposed are expected to support new and ongoing efforts at the state, regional, and national levels to increase awareness, knowledge, and understanding of newborn screening, to facilitate harmonization of newborn screening activities, and to improve the quality of newborn screening and related genetic services across the United States through innovation and technology.

Contact Information

• Agency

  Department of Health and Human Services

• Office:

  Health Resources and Services Administration

• Agency Contact:

  CallCenter@HRSA.GOV
  CallCenter@HRSA.GOV
  

• Agency Mailing Address:

  Contact HRSA Call Center at 877-Go4-HRSA/877-464-4772 or email

• Agency Email Address:

  CallCenter@HRSA.GOV

• More Information:

  https://grants.hrsa.gov/webExternal/SFO.asp?ID=AADC442E-3C6D-41A9-B30E-6905D26F61F9