Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation

Post Date

June 17th 2015

Application Due Date

August 14th 2015

Electronically submitted applications must be submitted no later than 11:59 p.m., ET, on the listed application due date.

Funding Opportunity Number

CDC-RFA-CK15-1504

CFDA Number(s)

93.283

Funding Instrument Type(s)

Cooperative Agreement

Funding Activity Categories

Health

Number of Awards

1

Eligibility Categories

Public and State Controlled Institutions of Higher Education
Federally Recognized Native American Tribal Governments
Non-Federally Recognized Native American Tribal Organizations
Non-Profits With 501 (c) (3) Status With The IRS (Except Higher Education Institutions)
Non-Profits Without 501 (c) (3) Status With The IRS (Except Higher Education Institutions)
Private Institutions of Higher Education
For-Profit Organizations (Except Small Businesses)

Community Based Organizations, Faith-Based Organizations, Urban Indian Health Organizations and Tribal Epidemiology Centers

Funding

• Estimated Total Funding:

  $70000

• Award Range:

  $70000 - $70000

Grant Description

Background: Creutzfeldt-Jakob disease (CJD) is an incurable brain disorder that occurs with an incidence of one case per million annually. The majority of patients die within six months of illness onset. The disease causes damage to the brain leaving patients completely dependent on their caregivers for the most basic needs of daily living. In 1996, a variant form of CJD emerged in the United Kingdom, which was causally linked to bovine spongiform encephalopathy (BSE). Over 200 variant CJD cases have been identified worldwide, including three cases in the United States whose BSE exposure is believed to have occurred outside of the United States. Purpose: The purpose of this program is to enhance support to family members of patients with a suspected or diagnosed case of human prion disease as well as enhance support for national surveillancefor CJD and its emerging variants by (1) providing family members of such patients with easy access to consultations with persons experienced and knowledgeable about practical issues related to this disease, 2) facilitating educational and other mutually beneficial interaction of researchers with family members of CJD patients (3) increasing general awareness about CJD and (4) increasing the number of autopsies of suspected CJD cases. This program addresses the “Healthy People 2010” focus area of Infectious Diseases. Increasing awareness about CJD can be achieved by facilitating dialogue among CJD researchers, family members, and health care professionals. Increasing awareness empowers CJD families to make the appropriate decisions about the care of their loved ones. Learning more about prion diseases through autopsy study of CJD cases would assist in the determination of the various types of human prion disease present in the United States and their frequency of occurrence over time. Such study would also assist in the earlier recognition of potentially emerging forms of human prion disease and facilitate the development of improved pre-mortem diagnostic tests or treatments. Increasing autopsy rates is critical because CJD can only be confirmed through neuropathological study of brain tissue. Measurable outcomes of the program will be in alignment with the following Focus Area from Healthy People: Immunization and Infectious Diseases.

Contact Information

• Agency

  Department of Health and Human Services

• Office:

  Centers for Disease Control and Prevention

• Agency Contact:

  Nicole Goggins
  NAJ4@cdc.gov
  

• Agency Mailing Address:

  Grants Policy

• Agency Email Address:

  NAJ4@cdc.gov

• More Information: